American College Of Surgeons - Inspiring Quality: Highest Standards, Better Outcomes

National Cancer Database Participant User File 2004-2017 Data Now Available

The National Cancer Database (NCDB) is pleased to announce that the Participant User File (PUF) application for 2004-2017 PUF data is now open. The NCDB is accepting applications for site-specific files. The PUF application is open year-round, except for periods of brief maintenance and updates. Please note, there are major changes to the PUF web page and PUF data that are described below.

The PUF Data Dictionary and all other PUF documents have been moved to https://www.facs.org/quality-programs/cancer/ncdb/puf. All of the PUF information, including the Data Dictionary, Application Instructions, and other information are now included on this web page. The Data Dictionary is provided as a PDF file.

The 2017 PUF data include new radiation data items, including variables for Phase I, Phase II and Phase III radiation. The prior radiation items have been converted to the new radiation variables where possible. New record layouts are also provided to read in the new data, as well as new SAS and SPSS scripts (STATA scripts are no longer provided). Prior SAS scripts, SPSS scripts, STATA scripts and record layouts cannot be used to read in the 2017 PUF data. More information about these changes can be found in the Summary of 2017 PUF changes document on the PUF web page.

Other changes in the 2017 PUF data include updated vital status, 30 and 90 day mortality, and months of follow up for the 2016 diagnosis year. In addition, two new primary site files are available for diagnosis years 2010 and later: Langerhans cell histiocytosis, and Post Transplant Lymphoproliferative Disorder (PTLD).

For additional information please visit the PUF web page.

Questions regarding the NCDB PUF data and application process can be sent to NCDB staff at NCDB_PUF@facs.org.