The National Cancer Data Base (NCDB) is pleased to announce its first Request for Applications (RFA) for its Participant User Files (PUFs). The application period runs through Wednesday, April 3, 2013, and is open to any investigator from a CoC-accredited cancer program.
The NCDB PUF is a Health Insurance Portability and Accountability Act (HIPAA) compliant data file containing cases submitted to the Commission on Cancer’s (CoC) NCDB and complies with the terms of the Business Associate Agreement between the American College of Surgeons and cancer programs accredited by the CoC. The PUF contains de-identified patient level data and is designed to provide investigators at CoC-accredited cancer programs with a data resource they can use to review and advance the quality of care delivered to cancer patients through analyses of cases reported to the NCDB.
Successful applicants from this RFA cycle can expect to receive organ-site specific files, per the research interests of the investigator, which will include cases diagnosed between 1998 and 2011. These files will be made available in both SAS and SPSS file formats, and are anticipated to be released to investigators in July 2013.
Interested investigators must have credentials to access CoC Datalinks. The steps required to obtain a username and password for CoC Datalinks are outlined online. NOTE: Interested investigators must be assigned to the role of “NCDB PUF Applicant” in order to access the NCDB PUF Application Manager. Please contact your cancer registry staff or whoever manages staff contacts in CoC Datalinks for your cancer program for assistance in securing these credentials.
For additional information regarding the RFA process, related supporting documents, access to the PUF on-line Data Dictionary, and access to the NCDB PUF Application Manager, please visit Participant User Files.
Questions regarding the NCDB PUFs or the RFA process for a PUF may be directed to NCDB technical staff at NCDB_PUF@facs.org.