These Web site listings came from a Web site directory compiled by the AMA's EPEC program:
American Academy of Hospice and Palliative Medicine
AAHPM is an organization for physicians who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families.
American Academy of Pain Management
This resource provides the names of credentialled pain practitioners and pain management programs by zip code; offers direct access to the National Pain Data Bank for outcome measurement; provides links to other pain-related sites; has information about the agenda for the annual clinical conference in September of each year.
ABCD - Americans for Better Care of the Dying
ABCD is anon-profit coalition of citizens and professionals united to ensure that public policy addresses the needs of individuals and families coping with a fatal illness.
Cancer.gov
Cancer.gov is a wide range of accurate ,credible cancer information from the National Cancer Institute. The comprehensive cancer database includes summaries on cancer treatment, screening, prevention, and supportive care as well as information on ongoing clinical trials.
Today's Caregiver Magazine
Caregiving is becoming a significant issue for many people. This resource provides help to others to cope with the demands of caregiving.
Dying Well
Defining Wellness through the ‘End of Life' : Resources for patients and families facing life-limiting illness.
Elizabeth Kübler-Ross, M.D., "On Death and Dying"
Elizabeth Kübler-Ross, M.D. is widely recognized as one of the foremost authorities in the field of death and dying. "On Death and Dying", is required reading in most major medical and nursing schools and graduate schools of psychology and theology.
International Association of the Study of Pain
IASP is open to scientists, physicians, dentists, psychologists, nurses, physical therapists,
And other health professionals actively engaged in pain research and to those who have an interest in the treatment of pain.
Last Acts
Last Acts is a call-to-action campaign dedicated to improving end-of-life care through the sharing of ideas and solutions by professional care givers, institutions, and individuals.
Medical College of Wisconsin Palliative Care Program
This program is committed to improving care for the dying in America through the development, implementation, and dissemination of innovative education and clinical care programs.
National Hospice and Palliative Care Organization
Founded in 1978, the National Hospice Organization is the oldest and largest nonprofit public benefit organization devoted exclusively to hospice care. NHO is dedicated to promoting and maintaining quality care for terminally ill persons and their families, and to making hospice an integral part of the U.S. health care system.
Oregon Health Sciences University Center for Ethics in Health Care
The Center for Ethics combines the perspectives of health professionals, patients, and families to improve teaching, research, and clinical consultation about ethical issues in patient care and health policy.
UB Center for Clinical Ethics and Humanities in Health Care
The Center for Clinical Ethics and Humanities in Health Care is an interdisciplinary academic center which draws upon a wide range of individuals from the School of Medicine and Biomedical Sciences as well as various health care and academic institutions.
U.S. Palliative Medicine Fellowship Programs
Existing and planned, as of August 2000, listed in chronological order. This fellowship directory will also be posted to and updated on the EPERC Web site.
UW Pain and Policy Studies Group
The UW Pain and Policy Studies Group is the study of public policy in relation to pain management, identifying and addressing the barriers to medical use of opioid analgesics.
The following Web site listings came from a directory compiled by J. Andrew Billings, M.D., Massachusetts General Hospital Palliative Care Service, August, 2000.
American Hospital Association Circle of Life Award
Presented annually to recognize outstanding initiatives to improve end-of-life care.
Community-State Partnerships to Improve End-of-Life Care Midwest Bioethics Center
Provides grants to support statewide coalitions composed of citizens, health care professionals, educators and policymakers that identify problems, make recommendations and build public support for practical policies, regulations and guidelines to improve care of the dying. Publishes State Initiatives in End-of-Life Care.
Education for Physicians on End-of-Life Care (EPEC)
Educates physicians, through its core curriculum, on essential clinical competencies required to provide quality end-of-life care.
End-of-Life Nursing Education Consortium (ELNEC)
A comprehensive national education program to develop a core of expert nursing educators and to coordinate national nursing efforts in end-of-life care.
End-of-Life Physician Education Resource Center (EPERC)
Assists physician educators and others in locating high-quality, peer-reviewed training materials. Visitors to the site can search for educational materials indexed by end-of-life care topic areas and educational formats.
Growth House: Guide to Death, Dying, Grief, Bereavement and End-of-Life Resources
Search engine offers access to the Internet's most comprehensive collection of reviewed resources for end-of-life care.
Innovations in End-of-Life Care
On-line journal features peer-reviewed examples of promising practices in end-of-life care. Each bimonthly issue focuses on a different theme.
On Our Own Terms: Moyers on Dying
Supports the On Our Own Terms outreach campaign with various tools, articles, personal stories, audio and video clips, and interactive opportunities.
Partnership for Caring: America's Voices for the Dying
National non-profit organization devoted to raising consumer expectations and demand for excellent end-of-life care. Offers resources for talking about end-of-life choices, the process of health care agency and state-specific advance directives.
Project on Death in America
Dedicated to understanding and transforming the culture and experience of
Promoting Excellence in End-of-Life Care
Manages 22 grant-funded projects designed to demonstrate excellence in end-of-life care in diverse institutional settings. The project is a National Program Office of The Robert Wood Johnson Foundation, headquartered in Missoula, Montana.
The RAND Center to Improve Care of the Dying
Conducts research designed to improve a system of care in which persons with serious and eventually fatal chronic illness can live comfortably and meaningfully until death.
Supportive Care of the Dying
Develops and tests innovative projects with individuals and organizations working to improve delivery of care to those facing the end of life. Videos and facilitator guides are available to help improve physician communication with patients and families.
Toolkit of Instruments to Measure Care at the End of Life
An authoritative bibliography of instruments to measure the quality of care and quality of life for dying patients and their families.
